Doctors are chalking up her low platelets to Chronic ITP, but we think it's Rickettsia related

So two days ago we saw the hematologist, the lead in my daughter's case.  He quickly reviewed the lab results from the 15 tubes of blood drawn the previous week from the rheumatologist's orders.  He didn't see that the Rickettsia Antibody Panel with Reference to Titers had indeed been ordered (my insistence with the Rheumatologist) and that these abnormal results were returned:

RMSF IgG Detected Abnormal
R. ricksettii (Rocky Mountain Spotted Fever)

Rickettsia (Typhus Fever)
R. typhi IgG Detected Abnormal

Her platelet count has now dropped to 148.  Recent platelet counts are:

2/16/2011:  260
2/28/2011:  234
3/8/2011:  158
3/16/2011:  148

The hematologist has concluded she has Chronic ITP and has stopped searching for a different cause for her low platelets.

Also, the Epstein Barr Virus PCR lab result returned high
Reference level is < 200
My daughter's level was 10812.

We are pleading with the hospital to get her seen by the Infectious Disease specialist.  Spoke today with the secretary of Hematology who arranged an appointment with ID two months out.  Told her that was unacceptable, given the lab results.  Waiting for calls from Infectious Disease (I called him again today) and Hematology and Rheumatology to follow up on the lab results and to get her seen by ID.

Checking out other options:  MGH and Children's Hospital in Boston.  Also booked an appointment in May with Dr. Bock (the physician who discovered her Babesiosis.)

My hunch is that the tick that bit her and caused the Babesiosis also carried Rickettsia or she was bitten by the tick and then contracted the Rickettsia from the flying squirrels in our house.

This is all just so exhausting......but I will never give up.