Just received a call from Rhinebeck Health Center that Dr. Kenneth Bock has an opening this Friday, April 1st. I had asked that the office put my daughter on the cancellation list. This appointment is much sooner than the May 17th appointment originally booked. We are taking it.
Do you remember Dr. Bock is the physician who discovered and diagnosed the Babesiosis? With the same symptoms returning, I wonder if he will look to rerun the Babesia FISH test. I wonder what he'll think about the flying squirrel problem in our house and that flying squirrels are known vectors for the Rickettsia bacteria. At the very least, it feels comforting to know that he will not discount these strange occurrences and rare illnesses but instead take a keen look at her history.
Will have to reschedule this Friday's newly-booked appointment with the new hematologist from MGH.
We see an infectious disease specialist at MGH on April 29. When I called to speak to someone in the department, it was reassuring that a) someone actually picked up the phone b) took an interest in my daughter's complex case c) kept asking questions to develop a full intake over the phone d) gave us the first available appointment and e) put us on the cancellation list.
This all begs the question: why does Floating believe her low platelets are due solely to Chronic ITP? Did they not see the lab results? My daughter has all the symptoms of Rocky Mountain Spotted Fever and Typhus Fever. Is is so far fetched she could have this? Could the numerous IVIG treatments have given her the very antibodies to her neutrophils and platelets that are causing their destruction? Why didn't Floating call in Infectious Disease back in 2004 when this all started? We don't expect to waste our energy pursuing these questions legally. It is what it is. But it is noteworthy.
So, it's good to get second....and third....opinions in life.
It's also good to never stop believing in your gut.
Hope to get some answers this Friday. At the very least I know we'll be taken seriously by Dr. Bock.
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